Roller Coaster

So I am extremely upset right now, the cardiologists changed on Monday morning and the new one has quiet a differing opinion than the one we had.  The first cardiologist was alright with him eating and so that is what we had been doing, which was making him quite happy then the new cardiologist came in and wanted to take away his feedings altogether.  The concern is NEC which is an infection in his intestines, Dr. Sadiq (neonatologist) said that the risk of that is about 3%-5%.  Not really high enough that it was a big concern but something that could happen.  Having the UAC & UVC (umbillical lines) I think makes that risk a little different but no one really knows what causes the NEC.  The first cardiologist was leaning towards the full repair of his heart sometimes in the next week or so, which is what we would prefer.  This cardiologist is wanting to do some balloon to tear/open the hole in the top part of his heart to better allow blood to mix inside his heart and then put a band on his pulmonary artery to reduce the amount of blood going to the lungs, since right now the flow or pressure is about the same to both arteries and normally it is about 20% to the PA.  I asked this dr about removal of the UAC & UVC and he hinted around that for this balloon surgery he would want to do he needed that line open but didn't really say if they could keep it open and take those lines out or what.  He doesn't really give straight answers, when I asked him about the nursing he tried to creep out of the room and when we asked for a final answer on how many times a day he said "I was hoping you wouldn't ask about that again."  This really upset me to think that this dr would just try to creep out and not answer my questions.  The cardiologists switch out every two weeks so we are stuck with him.  He wouldn't be my choice but Thursday Dr. Fiore (Cardiothoracic surgeon) will be back and he is the one who will make the final decisions so we are going to go with twice a day feedings until Dr. Fiore gets back and he might change that then.  I feel better after talking to Dr. Sadiq this evening and him OKing Greyson eating twice a day.  He explained that the UAC goes below the portion of his aorta that goes to the intestines and that the risk is much much lower with breast milk than formula.  We are going to stay on twice a day feedings at least until Thursday when the big wig might make a change. I want to do what is best for him and am confident that Dr. Fiore will make that call.  I have heard nothing but good things about him.