Procedure Scheduled

We met with Dr. Fiore yesterday and he agreed that at this point the balloon septostomy is the best idea at this time and then around 3-4 months we will do the first step in his procedure.  He also said that the Glenn, then Fontane surgeries are the best idea for him at this point, if his right ventricle grows in the future then plans may change.  Right now he is scheduled for his Balloon spetostomy on Monday afternoon, they will come in about 10am and put his respirator tube in and sedate him and do X-rays and such to make sure everything is where it is supposed to be, then around noon or 1 they will take him down to the cath lab and do the procedure.  They will bring him back up to the NICU to his room and allow him to start waking up from sedation.  Once he starats waking up they will remove his breathing tube and he will probably be able to eat tomorrow night.  Then on Tuesday we will start working more on him feeding regularly, they will stop giving him the TPN, which is the IV fluid with all his nutrients in it.  When the TPN is taken away he will start feeling hungry and will want to eat more often.  Once he is eating good and gaining weight and keeping his blood oxygen saturation levels up then we will be able to take him home.  We are hoping to be able to go home next weekend, but that will depend on him.  They will also be able to do his circumcision sometime in the day or two before he goes home.  We are super happy about everything that is going on right now, and once we got over the shock, I guess you could say, that things couldn't be repaired in one procedure we are much more happy with the way things are going.  He has been trouble since the beginning, he is a Knigge, lol.