Greyson did great getting his wires removed. They gave him some good drugs. He was pretty loopy. He got the RA and 2 pacer wires out and also had his NG tube replaced with a much smaller one. He did not like having the tube taken out but really hated having the new one put in.
Bowels are still an issue for him. He took miralax this morning and had the supository. He has passed gas but this afternoon we were certain he had blown up a diaper. He let out what sounded like 2 liquid blow outs. He didn't want us to change his diaper which made no sense considering how nasty it sounded. When we went to change his diaper all we found was a little skid mark and a lot of pee. No poops but that amount of gas lets us know things are moving along. As for urine output he has a lot. Since he is on lasix and they increased this to help with his coughing he is expected to pee a lot.
He did get 2 bites of a popscile today and asked for some of daddies soda. He got a little sip and hasn't been too interestes in anything since.
For right now the big goals are to get him to eat and drink some and get a poop out of him. He is feeling better and I have seen a few smiles today. He still feels awful and is far from himself but he's getting there. I can hold out hope that this will be like his second cath and he will wake up 1 morning feeling considerably better. He is getting better each day and he will get there. Until then I guess we move at his pace. And his pace is good enough for everyone.
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