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Friday, March 29, 2013

Fontan post op day 2: morning

Greyson has been in some slight pain. He woke up about 11 last night and said he had to poop. He again wanted to get on the potty so he sat up there but didnt do anything. He has been passing gas though. He had ice on his head last night for the headaches and just wanted to be cuddled (my arm bwhind his head).  He haant been complaining of headaches lately though.

He will not let me out of bed. I had to run to take a potty break late last night. He says he doesn't want daddy to lay with him but I'll bet that changes once daddy gets here.

His main issue thus morning has been coughing. Since he has new circulation his lungs are adjusting and he has some congestion because of it. They are going to up his diuretics to help with this.  He coughs but doesn't want to hold his bear or my pillow anymore. Its his main stresser right now.

After rounds this morning they stopped his heparin. Dr. Fiore is going to remove his RA going into the right atrium, his pacer wires since we have not used them since just after surgery, and his nurse will remove his catheter which should make him feel much better as well. After this we will be 5 tubes/wires down and 9 to go. He still has NG tube (and he doesn't want to eat or drink anymore), oxygen, 3 chest tubes, 2 groin IVs, an IV in his left arm, and an IV in his right foot.  Were getting there and he is getting better everyday. He's a tough little guy.

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