Monday fun day...not so much.

So I have decided Monday's are not good days for Greyson. I don't think we will be having saturation checks on Monday's anymore, or holidays for that matter. First it was presidents day (a Monday) we had greyson's saturations checked and ended up in STL for an emergency Glenn the next day. Then the trouble this past Monday. I'm just not doing sats on Monday's.

This Monday I took Greyson to the pediatrician to check his sats bc the Monday before they were sort of low. Addison had a cold that Greyson was starting to get and daddy got a few days later so we thought he might have been a bit congested and that would cause his lower ( mid 70's) sats. This Monday he was no longer congested and we went to have them checked again. I changed him before we went in and apparently on the drive he pooped. Once we got checked in I took him to change him and, like he has been doing as of lately, he pooped all up his back. I had no change of clothes so I had to wipe it up as best as I could.

We were playing in the waiting room and I noticed his lips were sort of blue. I knew his sats weren't going to be good. We got back and she put the monitor on his toe and it starts reading anywhere from 68-71. :( I called Nate and then the cardiologist. I had to leave a message for Dr. Rahimi but Nate had to go to chesterfield to make some deliveries for work so we decided to ride along in case Dr. Rahimi wanted to see him. He had indicated the week before that if they were still low he would want to see him. I heard from them around 2:30 and sure enough they wanted to see him. We took him over and they hooked him up to their montior. What does it read? 80!!! That is still a little lower than we would like him to be but much better than 68-71. They did an echo and everything looks clear. No blockages anywhere. I guess he just wanted to visit with everyone up there. It had been a while since he saw them all. We discussed that if they were low again he would likely need to be put on Viagra to dilate his PA (of course they call it something else). If he had to go on that it would be at least an overnight stay to get the amounts right. Hopefully we don't have to do that. He also said he shouldn't need a cath until right before his fontan to check the pressures in his lungs and make sure he could handle the new circulation the fontan will deliver. I had wondered at what point he would be able to have the fontan (if he needed it sooner than 30-35 lbs) and he said they could do it at 25 lbs but he will likely do better at 30-35. At least I know now at what point the final repair is on the table instead of something to get by until then.

So our Monday was busy and scary even if it were for no reason. I think you can see why I don't want to do sats on Monday's anymore. So we didn't have a fun day Monday but we did get to visit with our STL family.